By Jazz Shaban, Disabled People’s Organisations (DPO) Engagement Manager, Leonard Cheshire
Organisations and legislation often use the phrase ‘meaningful engagement’ when referring to involving specific groups in delivering or monitoring activities. But what does it mean to meaningfully engage disabled people for the work and activities of Leonard Cheshire?
I have been Leonard Cheshire’s Disabled People’s Organisations (DPO) Engagement Manager since July 2019. The main focus of my work has been to develop mechanisms that enable disabled people, and the organisations that represent them, to meaningfully participate in influencing and decision-making processes, particularly on issues that affect them. …
This year as the world embarks on a Decade of Action to achieve the Agenda2030 and Sustainable Development Goals (SDGs), citizen-generated data (CGD) initiatives led by young people, persons with disabilities and civil rights defenders are more important than ever. The COVID-19 crisis has placed a spotlight on the inequalities deeply rooted in our societies and the challenges faced by governments to respond to the needs and rights of their communities, particularly the most marginalised and excluded who have been worst affected by this pandemic.
As the world recovers and rebuilds, citizen-led data and inclusive partnerships with government and institutional data bodies will be critical to ensure that no one is left behind and the SDGs remain on track. By collaborating to collect disaggregated data, civil society, governments and service providers can further enable participatory, evidenced and effective responses to current and future crises. …
Kibe Yohana, Researcher and Disability Rights Advocate, explores the benefits of accessible global disability data.
The World Bank estimates that 15 percent of the world’s population lives with some form of disability. A majority of them live in developing countries where their exclusion level is higher comparative to those who live in developed countries. As such, a more concerted effort needs to be put in place by the various stakeholders to ensure that the needs of persons with disabilities from developing countries are addressed.
The previous paragraph shows an example of a pitch that can be used by a disability advocate to champion for the rights of persons with disabilities from developing countries. The paragraph presents an argument of exclusion based on evidence from a reputable international body, the World Bank, to support the case. The use of data not only presents figures to support the claim that there are a certain number of persons with disabilities, but also reinforces that by demonstrating how the group faces exclusion. Without this data, the argument that persons with disabilities are excluded become less powerful. A disability advocate, like any other advocate, needs research findings to support their claims. Without data from these research findings, an advocacy campaign is only based on the words of the person advocating and definitely not as powerful to lead to policy changes. …
DFID DISABILITY LEADERSHIP MUST NOT BE DILUTED IN MERGER
Disability rights campaigner, TV presenter and Leonard Cheshire ambassador Sophie Morgan reflects on the progress made since the UK’s first Global Disability Summit.
Two years ago today, I presented the UK’s first Global Disability Summit.
The event in London brought together more than 1000 delegates from governments, donors, private sector organisations, charities, and organisations of persons with disabilities.
Complete with an optimistic hashtag #nowisthetime and a Charter for Change (signed by over 300 governments and organisations) it offered a platform for progress, with the UK government pivotal in ongoing disability development.
Dr Mark Carew, Senior Researcher at Leonard Cheshire, explores the importance of quality data collection in assessing the impact of coronavirus on the disabled community.
Globally, things are not business as usual. Coronavirus has changed the way society and all of its institutions function, particularly amidst quarantine and lockdown rules that require people to stay at home in order to protect themselves — and others — against the disease. At the time of writing (mid-May), some of the worst affected countries within Europe are cautiously taking the first steps in lifting lockdown restrictions. Or at least raising this as a possibility soon. However, there remains considerable concern about a second wave of infection after restrictions are lifted, with talk of a “new normal” guiding how people live, work and learn, until such a time when a COVID’19 vaccine can be rolled out. Low- and Middle-Income Countries (LMICs) are at particular risk of a devastating outbreak because of a weaker health infrastructure, poorer urban planning, and less comprehensive waste disposal systems, among other factors. …
The Innovation to Inclusion (i2i) programme is exploring ways to improve data on disability, writes Amyn Lalji, research operations manager for pan disability charity Leonard Cheshire.
High quality data is essential in bringing about more effective employment and social protection policies for people with disabilities.
Leonard Cheshire and the International Labour Organization (ILO) recently reviewed the availability of employment and social protection data on people with disabilities in target countries Kenya and Bangladesh as part of designing the i2i programme
As researchers, we used a document review, in-depth interviews and focus group discussions with Disabled People’s Organisations (DPOs) to examine national data collection methods and the opportunities and challenges of having good quality data on employment of persons with disabilities and access to social protection schemes. …